Friday, October 18, 2013. 10 months worth of updates in one post. Or, at least I will try. So, here is my attempt to try to catch up to where we are now. 2013 has been an interesting year.

Tuesday, June 19, 2012. Here are a few pictures. Thursday, May 3, 2012. Yes, I know it has been forever. My crazy man was in a caged mesh bed and still managed to get himself lost in the bed. Oh and he did have hair at one point. Saturday, March 24, 2012. So needless to say it has been a s.

Saturday, February 22, 2014. Please watch the trailer for this important work. Then share it with everyone, everywhere. My thanks goes out to Dr. Katia Moritz, Nicholas Mille.

Monday, January 25, 2016. Will health update Q4 2015. 2015 was a medically challenging year for us. Two very long, emotionally overwhelming hospital stays along with some concerns about seizure activity. Sleep study - as if you can actually sleep with all that garbage on. All that same garbage from the sleep study is on his head, and more.

Sunday, January 1, 2017. Dearest Friends, It Has Been Far Too Long. miss the outlet, and the chance to share, but also miss the opportunity to take note and remember it all, as it is happening, and for the future. It has been 2 years and 6 months since my last post. and really, much longer since I have posted reg.

Tuesday, October 9, 2012. Thursday, March 1, 2012. Monday, February 27, 2012. Thursday, February 23, 2012.

Monday, October 31, 2011. LoL Halloween from the Hospital. Not only do they communicate well, they also continuously communicate with the nurses also! So they are constantly updated on how quinn is doing. after an entire week of being completely hesitant, pessimistic, apprehensive, nervous, anxious and frustrated, quinn very slowly tolerated her feeds! I was surprised, pleasantly of course! Quinn was cinderella today.